There are services that can help parents with intellectual disability:

  • Learn about your rights
  • Ask for help
  • Find an advocate

Disability advocacy

Ask Izzy is a website that connects people with services. If you have a disability it can help you find an advocate in your area https://askizzy.org.au/disability-advocacy-finder

People with Disability Australia (PWDA) is a national disability rights and advocacy service that is for and led by people with disability https://pwd.org.au/

First Peoples Disability Network (DFDN) is a national human rights organisation of and for Australia’s first peoples with disability, their families and communities. https://fpdn.org.au/

Self advocacy groups

Positive Powerful Parents is a Self Advocacy Group run by and for Parents with Intellectual Disability in Victoria. It started in 2012 to advocate for the rights of parents with intellectual disability to get the supports they need to keep their children at home. https://positivepowerfulparents.com.au/about-ppp/

Self Advocacy Sydney (SAS) is service run for and by people with intellectual disability in New South Wales. It helps people with intellectual disability become their own self-advocate. https://www.sasinc.com.au/

WWILD is a service that helps people with intellectual disability who have experienced sexual abuse or another crime in Queensland. They have support and resources for parents with intellectual disability https://wwild.org.au/parents-with-intellectual-disabilities-2/

DARU has resources and training to help organisations with disability advocacy. It can connect people with disability to advocates https://www.daru.org.au/find-an-advocate

More Help

The Bumpy Road, is a website made for and by parents with intellectual disability in New South Wales. It contains Easy English fact sheets and advice for parents with intellectual disability about child protection. It was developed by The Wash House.  https://www.bumpyroad.org.au/

Intellectual Disability Rights Service (IDRS) is the only legal service for people with intellectual disability in Australia. It can help you if you have a child protection matter in New South Wales. https://idrs.org.au/

And You Think You’re the Expert?’ is a podcast made with women with intellectual disability. It is about how to services should work with women experiencing violence https://andyouthinkyouretheexpert.com.au/

The Raising Children Network has resources for parents of children with disability about the NDIS, including easy English guides. It is making some new resources for parents with intellectual disability about the NDIS. https://raisingchildren.net.au/disability/ndis

For more information

To find out about services for parents with intellectual disability in your state or territory, contact one of the advocacy organisations listed on this page.